I feel different than you do. I like to call it “sending in the troops.” Anytime I do not seem in touch with reality. You see, I suffer from a disease that you cannot see; a disease that there is no cure for and that keeps the medical community baffled at how to treat and battle this demon, who’s attacks are relentless. :) Merry Christmas and Peace to all! It really has to be tough and painful to fight against such illnesses like fibromyalgia or any other similar. Fibromyalgia.
They are so bad i cannot even read novels any more. Change ), You are commenting using your Google account.
Do you have an unseen demon that assaults you and no one else can see? My family thinks Im just making excuses. In some cases it has to do with the fibromyalgia, in others it is because I am a writer and being a writer is a solitary life. 30 Things Only People With Fibromyalgia Tend to Understand, FIBROMYALGIA IS DECLARED AS A NEW LONG TERM DISABILITY, The Different Stages of Fibromyalgia (6th is so Scary…! Because of this, judgments are made that may not be correct. It was when a colleague noticed my symptoms and suggested l had the same as her that l did my research and insisted l was referred to a Rheumatologist. I started going back to school in 2008 to get my RN degree and it is very difficult.
August 25, 2016 August 25, ... A lot of times illnesses like fibromyalgia or multiple sclerosis will feel like you have the body aches of flu, but constantly. Hi, my name is Rich and I’m the husband of a woman with a chronic fibromyalgia disorder. However with Fibromyalgia, you will hear from many people that they would rather have a broken leg any day than suffer the kind of pain these disorders inflict. First of all, I would like to say that I am no hero or saint. But it was really nice to hear from someone that knows what Im going through. My prayers is that Doctors will soon find a cure at least a better treatment for this. My tears are shed many times when no one is around. Please understand that I am in such a fight myself and I know that I have little hope of a cure or effective treatments, at least right now. This page shares some of the letters and other ways fellow fibro sufferers have explained this to their family and friends: WHAT YOU SHOULD KNOW ABOUT FIBROMYALGIA FMS is not the newest fad disease. By admin On July 7, 2017 In Fibromyalgia Tagged fibromyalgia Leave a comment Author: Chandler Marrs, PhD Fibromyalgia I’m a relatively healthy guy. An Open Letter to Family and Friends from a Fibromyalgia Survivor A Compassionate Method of Communication About The “New You” by Lucinda Tart Dear Loved One(s), I lost all my friends because I cant keep up with activities so they just dont bother with me anymore and that hurts. what is your stage . My wife Bonnie and I just celebrated our 21st wedding anniversary. Feel free to pass it on to anyone you know who may be struggling with their loved one's diagnosis of fibromyalgia.
You can take notes at the doctor’s office and then review your notes together at home. i wish it was shown in dear abby or dr's mailbag in the newspaper so EVERYONE can read it and try to understand what this all is. Fibromyalgia is a disorder of the somatic nervous system which can significantly undermine a person’s quality of life through chronic pain and an acute sensitivity to pressure. I want nothing more than to be a part of your life. i know my memory is lost, i have to think of the word i want to say or remember something i hesistate.
But it has a name, and something I would not wish on anyone like right now when it hurts to do anything. So you see, you and I are not that much different.
STOP DOING THESE 16 THINGS IF YOU HAVE FIBROMYALGIA, 27 Real Symptoms of Fibromyalgia That Aren’t Just In Your Head, 6 Rare and Strange Symptoms of Fibromyalgia, 6 Aspects of Fibromyalgia Doctors Don’t Share, First Signs of Fibromyalgia: Early Signs and Symptoms. However hear my pain, listen for red flags always of any danger signals where you may need to help with added assistance. I have been accused of “playing games” for another’s sympathy.
Please don’t get angry at my seemingly lack of interest in doing things; I punish myself enough I assure you. I’ll never know what mood I will wake up with? We know that at the deeper levels of sleep, called delta wave sleep, a person’s mind conducts internal housekeeping. Do I experience mood swings? To me, a broken leg is even a poor example to compare suffering to these disorders and an insult to those of us with those disorders. Be flexible with invitations and plans that you have made.
Please try to understand how it feels to “lose” the keys, only to find them in the freezer. ( Log Out / To look at her you’d think, first, she doesn’t look her age (52) and second, she looks positively healthy. And there are those who say “but you did that yesterday!” “What is your problem today?” The hurt I experience at those words scars me so deeply that I have let my family down again; and still they don’t understand….
Related: A Letter To the Husband Whose Wife has Fibromyalgia Fibromyalgia Disability Car bumper sticker: Lets put this sticker on your car and spread the fibromyalgia awareness. Please don’t get angry at my seemingly lack of interest in doing things; I punish myself enough I assure you. I love to tell that joke to make another’s face light up and smile at my wit. But I have to do this thing my way. if anyone has heard of this and has some ideas please help me. During our travels around the country visiting cities that we love, she couldn’t handle walking around and sight-seeing for very long. Perhaps you could forward it to Dear Abby and see if she prints it. I was diagnosed in 1997 and my family has never read anything about the disorder and is always questioning me like, Why are you in bed this time of day? I too have hopes, dreams, goals… and this demon…. So I ask you to keep an open mind as I try to explain who I am and how FM/MPS has assaulted not only my life but those whom I love as well. This is why I feel like a child at times. I may be in pain. You won’t see my pain in the way you would a person undergoing chemo for cancer, however, my pain is just as real and just as debilitating.
My father was my biggest support but he past away in February of 06 and it is very hard on me not having his support. I will give all I can as I can, I promise you that. I may seem to be getting my life together and them bottom out all over again. I made honors when I was in college when i was younger; my classmates now get irritated with me and I just want to quit.
It has been making the circuit for several years and I don't actually knew who wrote it. I can't thank you enough newly diagnosed and a family that does not understand this is a blessing.
I hate feeling like crap every day. Hello Family, Friends, and Anyone Wishing to Know Me! My husband and my 2 college age kids dont understand. Sometimes it's hard to know the wors to explain but this letter gave me the words and I thankyou for that opportunity. And now, 11 years later, I have no income and am unable to work. ( Log Out / No-one understands but i will pass this on to family and the few friends i still have and hopefully they will get some idea of the nightmare that my life is. Allow me to begin by thanking you for taking the time out of your day to spend some time with me and get to know me better. Please understand that I am in such a fight myself and I know that I have little hope of a cure or effective treatments, at least right now. You will hear many things from me that to you seem as easily resolvable. Even the myriad of medications she is on are only able to ease her symptoms, but they don’t effectively fix anything and we don’t know if they ever will. On a brighter side I want you to know that I still have my sense of humour. ( Log Out /
Sleep, when I do get some, is restless and I wake often because of the pain the sheets have on my legs or because I twitch uncontrollably. Whoever maintains a journal needs to write down the time of the pain, the severity of pain, location, and duration of pain, medication is taken in case of severe pain and post medication levels of pain.
I can’t be miserable all the time, in fact I work hard at not being miserable. I never realized that you were afflicted with fibromyalgia. I have a physical illness and it isn’t my fault and I didn’t ask for it I don’t want it and I don’t deserve it. I found this letter on the internet some time ago, unfortunately the author is unknown. Thank you for spending your time with me today.
Why can’t I see the senselessness of my behaviour?
Fibromyalgia certainly needs more awareness. Occurring at the deepest level of the sleep cycle, individuals with fibromyalgia typically lack sufficient restorative sleep. I had private detectives following me around. I am fun to be with if you will spend the time with me on my own playing field; is this too much to ask? I found this letter on the internet some time ago, unfortunately the author is unknown.
Thanks for your support. thank you,thank you, thank you! If you want to be helpful to someone with fibromyalgia, just ask what you can do. This was written to help those who have a loved one with fibromyalgia better understand the disease. I think that all these conditions are caused initialy by spinal subluxation and I am having treatment for this currently. I don't know. Thank you for spending your time with me today. Most of the aches and pains I experience are from doing stupid things in my youth, that are now showing up as I get older. The stresses and sorrow in my private moments can be almost overwhelming. Most often, these are letters from former employers. Change ), You are commenting using your Facebook account.
And because of this judgments are made that may not be correct… So I ask you to keep an open mind as I try to explain who I am and how FM/MPS has assaulted not only my life but those whom I love as well. My husband is struggling to support this family alone and I do all that I can to help, but some days I just feel like crap. A person’s time is their most valuable asset and yours is appreciated. I feel like a child at times... Just the other day I put the sour cream I bought at the store in the pantry, on the shelf, instead of in the refrigerator; by the time I noticed it, it had spoiled. You may think you know everything there is to know about it, but there is more information out there than you think. Please try to understand…. And I learned that it is a condition that can not be easily detected and the pain that causes an affected person can really be devastating, emotionally and physically. You may wonder why I make the same “wrong” decisions over and over again. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. My mother is being more supportive now but my siblings don't even think about it. So all I want to say is that we should all be more supportive with these people suffering and their families, who suffer almost as much, and i demand the public administrations to provide more means and support for these people and their families. I walk through many of my days in a daze with the Fibro-fog laughing at me as I stumble and grasp for clarity. I am fun to be with if you will spend the time with me on my own playing field; is this too much to ask?
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